Anyone here have Fibromyalgia?

on Jun 12, 2014 @ 10:29 am

I am a 39 year old mother of 2 who was diagnosed with Fibromyalgia nearly 17 years ago.  I have been struggling with this condition and wondered if anyone here has it and if so what you are doing as far as treatment.  It would be nice to be able to chat with each other and get ideas about how to cope and just generally support each other. 

7 Replies

Hi :) on Jun 19, 2014 @ 09:07 am

I have fibromyalgia and juvenile rheumatoid arthritis :D was dx @ 7, although previously had a GP say kids don't get arthritis! I am 33 now and have one child age 15 :)

Hi Cleoqueenofdenial on Jun 19, 2014 @ 09:18 am

Nice to hear from someone who knows what it's like. Wow...gotta love GP's who tell you things like that. But, not all doctors graduate at the top of their class I guess. How do you cope with your fibro and arthritis? I am taking medication which helps but there is just not escaping it. I find yoga is the best thing for relieving stress, therfore helping pain management. Thanks for your reply...hope you are well :)

:) on Jun 19, 2014 @ 09:29 am

I do pilates, and am on a great "cocktail" of medications. It was the 80's lol I have had many of ignorant Drs in my lifetime. Rheumatology Department loves me I am a walking textbook. Sense of humor is a must that's for sure. Great family support.

Hi again on Jun 19, 2014 @ 09:38 am

Yes, absolutely. Family support is everything. I am very lucky to have a very loving and supportive husband and two beautiful boys who always ask how they can help. I have tried pilates as well. I am in Nova Scotia, so the climate is really not the best for Fibro, but the weather is starting to improve so getting out for walks and fresh air is a little easier :) Bring on the Summer!

Ontario here :) on Jun 19, 2014 @ 10:05 am

I'm in Ontario lol Canada in general not best climate for us, but I take,it like a trooper winter I hibernate lmao. Or have surgery. Best time of year to,do it. I'm on a phone so this is a difficult task to communicate effectively. I'm on Facebook, but I would note I post a lot and disable any form of notifications to me lol I'm not sure if I will show in a search either but maybe worth a try
Erin Stockford,

What is fibromyalgia, really? on Jul 19, 2014 @ 03:17 am

I was diagnosed with fibromyalgia by a GP who did an examination that, although it's said to be standardized and acceptable, was a joke to say the least.

I saw the doctor to get some pain management medication for injuries resulting from an MVA. GP went off on a tangent about how I had undiagnosed FM that was brought on by trauma. How did he examine me? Poked and prodded in several "trigger spots" and any slight adverse reaction on my part (i.e., expression of pain) in more than half of those specific areas was considered a positive test for FM. Even though I explicitly told the GP I had ongoing knee troubles (for which I wear a prosthetic brace) from old hockey injuries, an inflamed bursa on my hip from a snowboarding accident, and known soft tissue damage in my upper body (including whiplash) from the MVA... he interpreted my painful reactions in those trigger spots to be indicative of underlying fibromyalgia. An over-complicated diagnosis of a somewhat indefinable condition, in my opinion.

The only good thing to come out of the appointment with that GP was a referral to a pain clinic, where three specialists refuted the diagnosis in separate consultations.

I exhausted all the resources available to me as a health care professional, and could not be convinced that fibromyalgia is anything more than a diagnosis of convenience for GPs that feel the need to label chronic pain.

With the knowledge I gained, I chose to reject the diagnosis. I didn't see any value in the "FM" label, and I felt that it would be a crutch to my recovery.

Moving forward... I have tried a number of medications and treatments that are indicated for pain from various causes. I've had some successes, and a lot of failures.

I found an *excellent* physiotherapist whose treatment and homework plan is very specific (i.e., third vertebra, rather than 'neck'). I went to several physios before I found him. It has been worth it. I have also found massage therapy very helpful. Heat therapy is also cheap and easy and effective, for me. I have tried accupuncture, reiki and osteopathy, with no results. I'd like to try IMS, but no one will touch me for it.

In terms of medications, duoloxetine provided the most relief, but at the cost of a slight mental fog. My fiancé said I didn't seem myself. I am not taking any regular medications right now, but haven't ruled that one out. I use ibuprofen when needed; acetaminophen doesn't do anything for me. I was also prescribed some nabilone for spastic pain. It helps a lot, but has some crazy side effects. I've also tried gabapentin, amitriptyline, diclofenac, cyclobenzaprine, meperidine, codeine, and ketorolac... and have discontinued use of each, for various reasons (most often, lack of reliable relief, or reluctance towards long-term use).

I am currently doing some research on dietary trends that may affect chronic pain. My plan is to try to minimize high-histamine foods, which will be difficult, but may help...? I'm hopeful!

Living in constant pain is not fun or easy. Whether you subscribe to the diagnosis or not, know that there aren't any specific "fibromyalgia medications" out there. Trial and error, for traditional and non-traditional therapy (evidence-based and otherwise), would be my recommended course of action.

Good luck!


Was diagnosed at 25 on Aug 08, 2014 @ 12:03 am

I'm 27 now and rarely have to take medicine. I control my pain with exercise, a healthy high lean protein diet (no junk food or alcohol) and lots of water.
I have noticed that since I started working out and watching very strictly what I eat, that I am able to sleep better and rarely ever have pains or aches that are unmanageable.
Of course there are going to be the bad days but just power through and definitely do not let stress get to you. The more you focus on stress the heavier toll it takes on your body.

I would also recommend, if you can, be very careful about what medications you take. You don't want to numb yourself from pain that might not even be the fibro. I don't like to have a lot of medicine in my system, but definitely find what works best for you with a healthy meal plan and exercise routine.

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