on Oct 23, 2015 @ 11:27 pm|
I have been diagnosed with fibromyalgia and rheumotoid arthritis. I had to make the decision to retire because of the pain and what it was doing to my body. Turns out this was the best decision. Proves that everything does happen for a reason!!!
I'm wondering if anyone else has fibromyalgia and what they are doing to cope with it. Medications??? Coping techniques??? nothing???? Looking forwarding to hearing what you all have to say.
|Me too on Oct 24, 2015 @ 08:05 am|
Sorry to hear you are having a rough time with those medical conditions. Glad your retirement is making life easier though.
I have fibro too and myotonia. I have since about 3yrs old so I really don't know life any differently. I can easily deal with the fibro as it is easier to manage for me. The myotonia irritates me to no end. I do take mexitine (I believe that is how it is spelt) and it helps a bit.
Dr's have a hard time with me because the way I present myself is very different than what the medical exams and tests show. I guess when you only know one way of life you have nothing to compare it to.
|My aunt does on Oct 24, 2015 @ 07:17 pm|
My aunt was actually diagnosed with it a year ago and I know she takes meds for the pain. I don't know the name there like these little blue pills she takes four before bed. She get swollen a lot and bruises so easily its terrible I always saw commercials of it and thought nothing about it but now that I seen it I understand kinda what it is now. Im so sorry you have to deal with that !
|My aunt does on Oct 25, 2015 @ 03:35 pm|
Thank you for your reply. I agree - until it affects you or someone close, it's hard to understand it. also, since you don't present as being ill people have a hard time thinking there is anything wrong with you.
|Me too on Oct 25, 2015 @ 03:39 pm|
thank you for your reply. I don't know much about myotonia but it sure sounds like you've had a lot to deal with. I do think that more and more people are becoming aware of auto-immune issues and that the medical profession is getting better at dealing with it. My doctor thankfully is very open to anything that will work. We discuss different options and she has no problem with herbal or natural remedies. I also have hypothyrodism so that adds another layer to the whole situation.
p.s - i'm going to look up myotonia you've made me curious.
|Rambling reply on Oct 26, 2015 @ 09:49 am|
Hi there. I have Chronic fatigue and I have had fibro, diagnosed , for about 4 years now. Probably a little longer with various symptoms coming and going over about 2 years before.
I have tried a few different medications, Lyrica, and one other that the name escapes me, but a popular one. I take cipralex for anxiety as I started having these panic attacks which is foreign to my multi-tasking personality. It is much better now. I did take clonazepan for sleep for a while as I was chronically insomiac. There I focused on at first and took OTC meds for the pain, but I was basically wiped out all the time. Now my routin, of no caffeine, plenty of daily calcium, hot bath , voltaren , my Gabapentin, and body pillows I sleep far better than I used to. Great night 4 or 5 times a week, which I can live with. After no sleep it feels like heaven. lol.Through trial and error I am now on Gabapentin. Which is a drug they use for diabetic nerve pain, and for seizures. This I have had the best success with, and it has really helped. I watch my diet, plenty of calcium and limited caffeine for sleep and now no longer take a sleeping pill, but I am very careful what I eat in the evening to not disrupt it. I had a great 'cycle' through the summer. My body loved the heat and warmth, which I am told is common. I take a hot bath every night, and i use Voltaren frequently. With fall I am a little more sore. I am trying to learn and cope with different cycles, as I understand it is common. But it can get discouraging when you feel better and then it seems to drop off again. I have seen many arthritis specialists who all did the ye ye, you don't have fibro, or arthritis. So I hadn't seen one for about 1 1/2 now. My walk-in clinic doc turned out to be fantastic and has been very good at helping me, and he found the Gabapentin to try. I get massages a few times a month, but it is vital to find the right one, as you know, I cant stand hard massages, but it does feel good on some areas.
I am seeing a new arthritic doc in December as my doc and I are sure I have some in my hands and elbows. So I am hopeful his recommendation will be a helpful doc.
I encourage you to try home methods to use on a daily basis, find some things that work for you. Every person is different and different symptoms. I get overhwelmed by noise, and wake up slowly now. Just work with the symptoms and over all tell those close to you. So they know, it really helps when you can say. It's too noisy in here, I need a quiet place, and they get it. Or whatever might be going on. Hang in. :)