Fibromyalgia


Anonymous
on Jan 09, 2015 @ 09:01 am

I've had this since 2000 but was not diagnosed until 2007.  So many doctors think you are whinging or it is all in your mind.  finally I was referred to a rheumatologist.  He tested me with the touch point test (very easy) and diagnosed me immediately with fibromyalgia.  My life has been altered a great deal.  Not able to plan events in advance.  Life altering.
You feel dragged out and achey, for some the pain is unimaginable.  I was given lyrica and morphine.  the morphine being as I await hip replacement.  Falling apart. LOL  The fibromyalgia pain is not funny at all.  There is fibro fog where you cannot remember things.  The entire illness is terrible.
 


9 Replies


rogersresaca
Fibro on Feb 06, 2015 @ 11:04 pm

I have been wondering if this is what I have? My doc shrugs it off as you are too young! I have brain fog constantly and I hurt in different parts of my body. It's a different part that hurts every few days. At times, I can only lay in bed. I can't take morphine, since I'm allergic to it. I hope you feel better.
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chrissyann123
Fibromyalgia on Feb 07, 2015 @ 07:45 pm

My mom has fibromyalgia and she went through many of the same problems that you wrote about. I seen my mom go from a beautiful, out going and very busy women. To a women who is in pain most of the time.It totally changed her life and my dads life also. Very sad misunderstood illness.
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prettyrainbow
food and exercise on Feb 14, 2015 @ 06:03 pm

My heart goes out to all who suffer from chronic pain illnesses. I know firsthand how difficult it can be and have found that our diet has a lot to do with controlling pain in our bodies. Try reducing or eliminating foods that cause inflammation (ex: gluten, dairy, etc...). It takes a little research but it could be life changing. Also read up on the benefits of apple cider vinegar as well as turmeric.

I know it's not the only factor to reducing the pain but with all the chemicals and weird ingredients in the processed foods we are sold, I'm sure it can only help us by eating clean and preferably organic.

I would also look into yoga as it's know to reduce pain and stress. It's worked wonders for me when I was at my wits end with pain.

Hope this helps you out!

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Radar Lover
I hear ya! on Feb 16, 2015 @ 09:46 pm

I was diagnosed in 1991. I have had this most of my life and due to that I do not know life any differently. I also have Myotonia which is way worse for me and I cannot control my muscles as I would like. (Ever hear of that fainting goat? It's myotonia).

Anyways, it's a hard thing to deal with but as soon as you accept it, it does get better. You learn more about yourself and learn how to live differently. Just like anyone else that has a disability. You have to try to overcome it and handle it the best you can or it will take over you. Just stay positive, it helps.


**HUGS**

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Anonymous
sorry on Feb 26, 2015 @ 07:11 pm

I am also on lyrica for Fibromyalgia. i have suffered over the years not only with the pain but just like you doctors told me that it was all in my head. i am sorry for what you have to go through, hope you fine it easier to cope with the lyrica. sending love and hugs your way.
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Anonymous
you are so positive on Feb 26, 2015 @ 07:15 pm

sorry hun wishing you all the best. you have such a positive attitude. you are an inspiration.
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DeaneB
I understand! on Mar 13, 2015 @ 12:48 pm

I too have fibro, I was finally diagnosed about 9 years ago after I switched family doctors. Before that I was told that I was depressed and put on anti depressants, another doc told me it was all in my head! OK! I'm not imagining the pain! The doc I have now is amazing, she did the pressure point test and also ruled out rheumatoid arthritis and a couple other things before diagnosing. I work full time and believe there are more days than not that I struggle just to get up. My pain tends to mostly be in my neck, upper back, shoulder and arms. I have been on lyrica(that helped but I was allergic), Prozac, ampitriptaline, cymbalta, nabilone, percocet, and I cant remember the others. I've tried massage(couldn't handle it too painful) acupuncture (never helped) and moist heat therapy(helps a bit) I've went gluten free(no difference). Gentle exercise like yoga stretches helps and walking. I know what you're all going through and its nice to talk to others who have it. A great support system helps too. My husband and my kids understand and are supportive. Hope this helps. Gentle hugs....
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prettyrainbow
Strategies on Mar 13, 2015 @ 03:51 pm

Somatic stretching exercises can help relieve chronic pain. Also, have you tried meditation? It can help calm down your nervous system, which also triggers pain. Acupressure and reflexology might also be something you'd like to look into.

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kandress
Fibromyalgia on Mar 21, 2015 @ 07:32 pm

I too suffer from Fibromyalgia. I was first diagnosed in the late 1990s. It has changed my life drastically. The chronic pain, sleep deprivation, restless leg syndrome, chronic fatigue and depression are sometimes a lot to deal with. I have an excellent family doctor and rheumatologist that have been treating me for some time now. There are many fibromyalgia support groups through the Canadian Arthritis Society that are very helpful. It is a very debilitating disease.. And no its not in your head..just because it is an invisible disease to those around you, doesn't mean it doesn't exist. It is very misunderstood. Fibromyalgia is caused by overactive nerves that cause chronic pain throughout your entire body. The pain radiates to the muscles and causes causes the muscle aches, like continually having aches and pains from the flu. I have found that the best thing that helps me is to keep it to a minimum. Sit when ever I can to prepare meals, and when ironing. Get help with the housework and only do what you can. like don't try to wash all the floors in one day. Take time for yourself. Get that new hairstyle, have coffee with a friend and know there is always help available. Sincerely Kimberly Andress
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