Has anyone had endometrial ablation? Warning: gross details

on Apr 14, 2016 @ 07:06 pm

I had it plus 2 D&C;'s and tubal ligation three years ago. I had severe dysmenorhhea for years that became much worse after my last pregnancy 8 years ago. I was bleeding so badly I would expel huge toonie size chunks of clots (about a cupful at a time), wear a pad and a tampon at the same time and have to change within an hour. It would wake me from sleep where I would just gush blood and have to change myself and bedding several times a night. I was very anemic and spent several times in hospital. I almost needed a blood transfusion. It was very painful - i took toridol for five years. I had to take oral progesterone to try to minimize the bleeding (which didn't really work). I bled about nine out of every ten weeks. My gynecologist told me I needed a hysterectomy but I could try the ablation. I went with that option because it was less invasive and less recovery time, even though he said there was a 60% chance it wouldn't work at all.
So it worked about four months after the ablation and I didn't have a period. Now 3 years later I can feel hormonal again. I am getting cramping and sometimes bad pain. And now I'm starting to bleed again.
Has anyone else had this happen?
Have you had a hysterectomy? Hysterectomy is my next (and only other option). I just want to know what to expect. Maybe this bleeding means my period will come back full force?? What is it like to have a hysterectomy? I'm a bit afraid of having one.
Any personal experience is appreciated :)

13 Replies

fly-eyez on Apr 14, 2016 @ 07:39 pm

There are things I could tell you, however it is best to communicate with your doctor so he/she can advise and treat you. Good luck and not to worry.

.. on Apr 14, 2016 @ 07:41 pm

I have not had one but my sister in law had a hysterectomy and she said it was the best decision that she ever made. She was off work for about 8 weeks but recovered very well.. Hope things work out for you..

Thanks for replying on Apr 14, 2016 @ 07:49 pm

Just to be clear, I'm not asking for medical advice - I am seeing my family physician and now a new gynecologist ( I'm living in a different city than where I had the procedures done). A hysterectomy is my next step should things get worse and it appears that since I'm starting to get hormonal and bleed again I might be getting my period back.
All I am asking is if you've had a hysterectomy or ablation and what your experience has been. Has it been similar to mine in which you had the ablation and you then needed a hysterectomy, etc.
@sjm I'm glad to hear your sister is happy about her decision :)

. on Apr 19, 2016 @ 08:44 am

My mom and one of my cousins had similar issues to what you've described and tried various medications to control it but it just wasn't good. So my mom tried an ablation and it helped for a number of months(can't remember exact off hand) but under a year. She finally got a hysterectomy around 52 and says she just wished she'd done it decades before because she felt so much better. My cousin got a hysterectomy at 31 to control this(as did her mom now that I think about it). They were done having kids and needed relief. All 3 of these women have told me they do not regret a hysterectomy at all. They feel amazing compared to how they felt before. They all still have their ovaries though. Good luck with everything.

Hysterectomy on Apr 19, 2016 @ 09:04 am

As far as recovery, it was a bit longer for my mom as she was older, not in as good of shape. But she still was within the expected recovery time. My cousin and aunt didn't find recovery awful either. Better than they'd expected.

me too on Apr 19, 2016 @ 09:14 am

I too have had a lot of the same problems you have listed. The heavy painful periods, and severe anemia...but my gynecologist went a different route. Because I was fairly young, they were very reluctant to do a hysterectomy, so instead I tried stopping my periods altogether by taking birth control continuously. It has gotten rid of any pain from endometriosis, and I no longer have periods, so no blood loss anemia. It is the best decision I could have made.

. on Apr 19, 2016 @ 09:32 am

Thanks Krissi. I'm not looking forward to the 6-8 weeks recovery time but NC I'm still relatively young (and he wanted it done 7 years ago that would have placed me at your sister's age. I guess I will just have to do it and get it over with. I'm so reluctant to have more abdominal surgery (= more scar tissue which =more pain due to my bowel diseases and the reason why they cannot do bowel surgery - bc it has affected other organs). Ugh. Oh well, I know I can't go back to what I was going through before with my periods!!
@Vanessa - I took back to back birth control for many years and it still didn't work. It worked at first but then even with taking oral progesterone I would still have severe bleeding. I hope it works out better for you :) my sister has endometriosis badly and it's very painful for her. It took her a long time to get pregnant and be able to carry to term without miscarriage. I hope it doesn't affect you the same way. It sucks being a girl sometimes...

. on Apr 19, 2016 @ 10:56 am

I had a hysterectomy 19 years ago at 34 years old. It followed years of struggling with endometriosis as well as HSiL...highly suspicious cells found through a routine PAP smear. It went very well. I was up and around the next day and felt almost normal within a week. I was off of work for 6 weeks, and you do need to be careful not to do any heavy lifting, etc.. Pain was minimal, and recovery much earlier than expected.

@wendy on Apr 19, 2016 @ 02:56 pm

Thanks Wendy. I only had one of the suspicious results a few years ago. I had to have paps every 3 months. Then once I had the rest come back ok I had to go every 6 months and now I can go every three years. I hope you're doing okay. It's kind of scary when you get suspicious cells, although it sounds as if yours was much worse than mine. I'm sorry to hear that and I hope nothing comes of it.
Thanks for giving me first hand experience with a hysterectomy. I certainly don't want it but I won't have a choice if the bleeding becomes worse :(
I had an emergency csection with my last child so I was assuming it might be similar to that. They do call it a major surgery. If it's done laparoscopically then hopefully I'll have minimal scar tissue to add to what I already have.
My sister has really bad endometriosis too. I'm sorry you're ginger through that. She says it's hell referring to the pain.

Ablation on Apr 21, 2016 @ 10:27 am

I had an ablation as well and after about three months my periods starting coming back slowly at first and then right back to the way they were before the ablation. It was suggested by my gynecologist that I have a hysterectomy as I was bleeding so heavily causing me to have a very low hemoglobin. That was 10 years ago and I have never looked back. It was the best thing I could have done. I still have my ovaries which allow my hormones to still work properly. Good Luck in making the right decision for you. Research this before you do it as everyone is different.

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