Thyroid; hypo or hyper?


CharlieGirl
on Mar 27, 2015 @ 10:47 pm

I have congenital hypothyroidism as I was born without my thyroid. At 27 I am just now learning more and more about it and am working on feeling "normal" for once!

Any body else with Hypo or even hyperthyroidism? Lets hear your stories

 

18 Replies


bethanito
Hypo/hyper on Mar 28, 2015 @ 01:09 am

For the longest time I thought I had a problem with my thyroid. I did a basic blood test but nothing showed up. Although I've been told it can be quite hard to diagnose. I'd be interested in getting some further testing done, but I haven't gotten around to it. I have enough things wrong with me though, so I hope that everything eventually comes back negative. Glad to know that you're starting to feel better! :)
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rogersresaca
hypothyroidism on Mar 28, 2015 @ 12:07 pm

I've been battling hypothyroidism for so many years. I'm currently on 100 micrograms of Levothyroxin. My weight has doubled, hair still falls out, hands,feet still stay cold and brittle short nails. I've never gotten mine straightened out to this day! I'm so aggravated and most blood tests don't show if your levels are off. They have to check the TSH, T3 and T4 levels. Most doctors only check the TSH. I've developed a goiter and loose my voice quite a bit lately. I feel tired all the time. I don't know why they can't get it straight with my meds. I've been so disguisted with this condition for years. I will probably have to have it removed, as it has been swelling so much lately. 1 small little gland and it controls so much in your body. It's on each side of the lower part of your neck. I hope I can 1 day start to feel like I use to. It's a long battle that I've been fighting for years. The weight hasn't even budged and I've not lost any pounds, I take my meds 1st thing at 5am on an empty stomach. I hope some one has some good advice, because I'm so tired of feeling so tired!! Ginger
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CharlieGirl
STTM on Mar 28, 2015 @ 04:14 pm

If you are interested in learning more about thyroidism I have found a great website and they have groups on Facebook too that are very informative and supportive when it comes to learning about your "disease". They are my go to when I have any questions or concerns or even just to vent about symptoms, unsupportive friends and family or doctors. Let me know and I can send you the links :)
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rogersresaca
hypo on Mar 28, 2015 @ 06:16 pm

Hi there and thanks, I would love the website. I don't do FaceBook though. I've done so much research on this since I've had it for at least 8 years. Nothing ever gets better and I'm only 46 to be this tired all the time. No doctor has ever ordered a CT Scan or the other test to look at it. I really need to go to an Endocrinologist. Thanks, Ginger. I think I sent you a friend add also.
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JudesW
Hypo on Mar 28, 2015 @ 07:15 pm

I've been on Synthroid since about age 18 and apart from a "thyroid storm" in my late 20's, and occasionally getting "hyper" requiring me to reduce dose, I have done pretty well with regular blood tests and my daily dose .1125mcg. However, now my adrenals have tanked and I have to take cortisone every day. Luckily I haven't gained weight - thank God! I know there is a correlation between the adrenals & thyroid, but am not quite sure how it works because the glands are all very complex in how they work together and off one another.

I wanted to say to Bethanito that my sister was going thru the same frustration and just looking at her I knew she was also hypo. I urged her to get her TSH and it was borderline but I told her to push her Dr and put her on lowest dose and he did & she was 100x better overnight (her words) and lost weight, got her color back, etc. I think the Dr gave her Synthroid because I had it & it tends to run in families. But hang in there and ask if you can try the lowest dose. If you don't need it & it makes you hyperthyroid, that will show up in your blood work & then you will know. My thyroid occasionally gets hyper & it's not pleasasnt - I get hot & sweaty & my heart beats too fast & I feel literally hyper. So, it's not like you'll want to stay on it if you don't need it!

Good luck!
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CharlieGirl
TSH on Mar 29, 2015 @ 09:39 pm

Honestly, you TSH levels aren't that reliable...You can feel horrible but if your TSH levels are "normal" your doctor won't do much. Go by your symptoms and listen to your body. I am trying so hard to get my doctor to switch me to natural thyroid treatment called Natural Desiccated Thyroid which is the thyroids from pigs and cows (don't worry they're clean and raised properly!!) but most doctors aren't for natural medications...I'm still learning sooo much but seriously check out this website and you will find out everything you need to know about your thyroid, adrenals, TSH, all FIVE of the thyroid hormones, everything!

www.stopthethyroidmadness.com

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kjt641
Thyroid Brain on Mar 30, 2015 @ 05:02 am

I have always had an issue with anemia, low iron, thinning hair, mood swings and weight gain (i.e. I couldn't gain it) enough so that I was accused of drug use. A severe headache sent me to my Dr who ran tests and determined all these things were my thyroid! I now take 50mcg of Levothyroxin. I find I plateau on my medication every 3-4 months so I adjust my dose around that.
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CharlieGirl
Thyroid Brain on Mar 30, 2015 @ 12:27 pm

Were you Hyper kjt641? Usually with hyper is when you have issues with losing and not gaining weight...I wish I had hyper sometimes haha it's really quite amazing how much is related to your thyroid...there are about 300 symptoms (of course not every one as them all) that I had no idea about until a few months ago. It's a constant learning experience! I hope you have it under control and take the time to really learn about your thyroid issue.
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kjt641
It gets easier on Mar 30, 2015 @ 12:31 pm

Yes I have hyper. And already have a naturally high metabolism which makes for a crazy mix. Not being able to gain weight is no fun either! I still get the severe migraine like headaches from time to time and every several months I take a round of oral steroids.
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CharlieGirl
migraines on Mar 30, 2015 @ 01:59 pm

The migraines are horrible! I get headaches daily and migraines at least once a week...That is my next symptom to get fixed haha

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