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Nora Vs. The Tumor and How We're Redefining "Normal"

Posted by Nora | Thursday December 1, 201162 comments

A while ago, I wrote a little ditty about how much I love surprises. Because the Universe doesn’t differentiate the intricacies of the English language, it took me literally and delivered me a surprise that can only be described as one doozy of a humdinger.

No, not a baby left on my doorstep. Not a puppy in a basket. Not a long-lost twin that my parents had been hiding from me. Not even a squirrel jumping out of my garbage can (I expect that at this point).

Nope, not an awesome surprise. More like a surprise where your cell phone rings at noon on a Monday and it’s your boyfriend’s co-worker telling you that said boyfriend just had a seizure at work and is this normal?

The kind of surprise where a boyfriend’s seizure isn’t normal and you assume this co-worker is joking and call the front desk to ask a poor receptionist on her first day of work to verify the boyfriend was seizing. The kind of surprise where her answer is Yes and you’re racing (and beating) his ambulance to the hospital for a week-long, mind-spinning, world-upheaving, life-altering journey through the world of modern medicine.


You know, that kind of surprise.

On a normal day, I wake up and tell my boyfriend that life is a miracle. He then tells me to please go back to bed. I’m up and out the door at least an hour before he even hits snooze for the first time, but I usually wake him up one more time by shouting my love for him as I head out the door.

I say these things because I really, truly believe it in a way that I didn’t before this awesome guy crossed my path. He’s been a bright light in a happy and generally trouble-free life, even if he’s given me fine lines around my mouth and eyes from all of the hysterical laughter and uncontrollable smiling he’s forced upon me in the past year.

The same day of the Worst Surprise Ever, I ignored my incessant alarm and snoozed not once, not twice, not even three but four times, waking Aaron up each time to tell him I wanted to spend exactly nine more minutes with him and diving back into bed fully dressed to aggravate him with kisses and tell him that I loved him so much I wanted to punch him in the face.

I didn’t know that it would be my last morning of Normal, and that I’d have to redefine that word in the weeks that have come since, but whatever pulled me back to bed that morning also had the courtesy to carefully preserve those memories in crystal clear details.

Since that morning, I’ve been shown charts and graphs and images that show the inner workings of his heart and his head, but they’ve only confirmed what I already knew: that he’s got a heart that works harder than any other and a strong and resilient spirit. Luckily, those two things are contagious, so even as we wade through an endless sea of long Greek words and noisy machines, we’ve created a sense of *normal*. And no footnote is going to define our lives.

So, uh, what’s new with you guys?
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21 Comments

on December 01, 2011  takoda  28,648 said:

I'm so sorry to hear about this. I hope everything works out and it was
just something small. Do you know if he had any bad hits to the head
over his life, or if was really sick as a kids with something? I ask you
this because about ten years ago I started having seizures out of the
blue like that two. It turned out that brain scarring was the cause of
them. The Dr told me they believe the scaring was caused when I was
really sick as a kid and as it got bigger it started causing the
seizures. I've been on Dilanton ever since and will be for the rest of
my life. I wasn't aloud to drive until they found out what was wrong and
they were sure they had them under control, but that was only for a
mouth. I sure hope this ends up being nothing, but if you have any
question for me let me know. Hugs to the both of you!!

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