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Howl

  Member Since:  April 23, 2018
I like wolves and I have a sense of humor as well as enjoying the play on words. That's where my user ID comes in, it actually used to be a lot longer but I shortened it because it was easier to type. =)

When I was 21 I was diagnosed with Systemic Lupus and when I was 31 they turned around and said, we made a mistake you have C.R.E.S.T Scleroderma AND Fibromyalgia. I had read up on it some and had concluded that this was a good thing according to the info at the time. The more things you have wrong with you the slower the diseases are supposed to progress.

Unfortunately no one told me I was going to be in constant pain day and night. Both my muscles and my skin cause me this pain not to mention the muscle spasms which I can get in my upper body just from crawling into bed (just one of many problems). I also didn't realize that I was going to have hard calcium deposits moving around and through various parts of my body.

I have extremely sensitive skin and I am allergic to almost every topical cream out there and the only pain killers I can take are Acetaminophen and Ibuprofen.

I am NOT allergic to any food related products!!

And now I've been diagnosed with Pulmonary Arterial Hypertension in the 3rd stage. I've been put on oxygen 24/7 and I can't go anywhere as just walking around the house tires me out. A year later I was Informed that I have an even worse condition an even rarer form called PVOD and given 1-5yrs to live without a lung transplant. How LUCKY! /sarcasm

I hope that made someone feel better! ;) My Father is constantly saying It's not all Sunshine you know.



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